Six-Year-Old Moira Is One of the Sickest People in America. So Why Is North Carolina Trying to Gut Her Health Care?

Kids with complex medical problems were supposed to get the care they need at home—until states began taking away their services.

Moira in her specialized chair in the kitchen of her home in Greensboro

Many of our parent-caretakers of living children coping with a Trisomy 18 diagnosis WANT you to read this important article. It will help you understand what our care-taking families face caring for their medically-fragile children. Without protections for pre-existing conditions and lifting of lifetime policy caps, these families are left without health care for their child and their whole family on the policy.  We can do better!



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