Kids with complex medical problems were supposed to get the care they need at home—until states began taking away their services.
Many of our parent-caretakers of living children coping with a Trisomy 18 diagnosis WANT you to read this important article. It will help you understand what our care-taking families face caring for their medically-fragile children. Without protections for pre-existing conditions and lifting of lifetime policy caps, these families are left without health care for their child and their whole family on the policy. We can do better!