Trisomy 18 Stage

Krissy, age 18 , living with Trisomy 18 is Cheerleader for the Day

Buckley HS in Buckley, Washington make Krissy Krotzer, 18, who was born with Trisomy 18, Cheerleader for the Day. She is nonverbal, and has limited mobility. But she’s bubbly and not afraid to demand a kiss from her dad. “There’s a lot of things she can’t do, but the one thing she can do is …

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Trisomy 18 Foundation with 87 Other Organizations Call on Congress to Protect Medicaid

The Trisomy 18 Foundation and eighty-seven other Health Advocacy organizations joined together this week to call on Congress to address the significant and life-threatening consequences of their new health care plan for families who rely on critical health care services funded by Medicaid. Our combined efforts with these organizations that represent a range of patients …

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The Trisomy 18 Foundation’s Director Gives Talk at National Conference

At the Trisomy 18 Foundation, we work to educate healthcare professionals who are on the front lines of delivering a Trisomy 18 diagnosis. Last month, our Executive Director Victoria Miller spoke at the National Society of Genetic Counselors Conference in Seattle, Washington.  We regularly build relationships with Genetic Counselors who are important allies in helping …

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Improving Access to Medical Literature for Parents and Families

Our new Clinical Literature Resource improves access for Parents who often encounter challenges accessing the relevant medical literature that allows them to fully participate as informed advocates for their child. The Foundation has long advocated with coalition partners for Free Public Access to federally-funded peer-reviewed literature which is usually restricted to a pay-per-article system that …

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