Connecting with other families who have experienced what you are experiencing is such an important need for all parents — especially in the early day of learning about Trisomy 18 when everything you’re learning is a shock. You may feel alone or afraid, and you are uncertain about what the future holds for you, your child and the rest of your family.

But you are not alone.

There is an entire community of parents who faced what you’re facing and come out the other side. At the Trisomy 18 Foundation, we want to connect you to those families who have been in your shoes and offer a variety of ways to make those connections, whether that’s one on one or in private online groups.

We also want to help you find the group that is right for your stage in this journey. For example, parents facing a prenatal diagnosis during pregnancy often find it difficult to be in a group focused on the caretaking of living children when their child has not arrived yet and may never reach those stages of development.

We are here to help you find the support you need. If you would like one on one support, please contact us, and we will put you in touch with another parent who can offer support and answer the questions you have. If you’re not sure which community is the right fit for you, please reach out. We can help.