Archives: Blog Posts

In Loving Memory

In Loving Memory of our Children Gone Too Soon Memorials from January 1, 2020 Matthew Nelson 1/9/2020 to 1/10/2020 Barrett Henry 1/17/2020 Born Still Jackson Henry 1/16/2020 to 1/18/2020 Leon Matthew Thomas 1/19/2020 to 1/19/2020 *Lived eleven hours Josephine Rose King 1/20/2020 to 1/20/2020 *Lived two hours Logan Olivia Walsh 1/22/2020 *Lived twelve hours Franco Figueroa 1/22/2020 Born Still Ada Wren 1/28/2020 Born …

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New Executive Director!

The Trisomy 18 Foundation Board of Directors is pleased to announce the appointment of Kris Shaughnessy as the new Executive Director.  Kris will replace Victoria Miller who is retiring effective February 1st, 2020.  Outgoing Executive Director, Victoria Miller Victoria Miller founded the Trisomy 18 Foundation in 2003, after the death of her son, Isaac.  Isaac …

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Six-Year-Old Moira Is One of the Sickest People in America. So Why Is North Carolina Trying to Gut Her Health Care?

Kids with complex medical problems were supposed to get the care they need at home—until states began taking away their services. Many of our parent-caretakers of living children coping with a Trisomy 18 diagnosis WANT you to read this important article. It will help you understand what our care-taking families face caring for their medically-fragile …

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Whimsical Photo Series Showcases Babies With Trisomy 18 and other Special Needs

Angela Forker’s “Precious Baby Project” features babies with serious medical conditions like Trisomy 18. “What a privilege it is for me to come into close contact with these precious little ones and their remarkable families!” the photographer said. “My hope is to continue to spread hope and joy to many more families and that my …

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