We all know Trisomy 18 is a relentless stalker of new life, often ending lives before they even get a chance. For those that do get a chance at life, their lives can be far too brief and far too burdened by life-threatening health challenges. As a community, we must stop this from happening to …
This year, in the days leading up to Trisomy 18 Awareness Day on March 18th, we asked our amazing supporters what were the Top Things We Wish People Knew about Trisomy 18. Over and over again, you shared what you wished people and other parents knew about having a child with Trisomy 18, and it …
For those of us who have lost a child to Trisomy 18, Mother’s Day can be such a painful day — especially the 1st Mother’s Day after our child is gone. And if we have no other living children, if this loss was the loss of our first and only child, we can wonder if …
Are We Supposed to be Able to Celebrate Mother’s Day? Read More »
A community working to make the world more aware of Trisomy 18 and the needs of Trisomy 18 families! National Trisomy 18 Awareness Day 2017
The Trisomy 18 Foundation and eighty-seven other Health Advocacy organizations joined together this week to call on Congress to address the significant and life-threatening consequences of their new health care plan for families who rely on critical health care services funded by Medicaid. Our combined efforts with these organizations that represent a range of patients …
Trisomy 18 Foundation with 87 Other Organizations Call on Congress to Protect Medicaid Read More »
At the Trisomy 18 Foundation, we work to educate healthcare professionals who are on the front lines of delivering a Trisomy 18 diagnosis. Last month, our Executive Director Victoria Miller spoke at the National Society of Genetic Counselors Conference in Seattle, Washington. We regularly build relationships with Genetic Counselors who are important allies in helping …
The Trisomy 18 Foundation’s Director Gives Talk at National Conference Read More »
Time to get out the purple and be ready to raise awareness about Trisomy 18 and the Trisomy 18 Foundation! Lots of great tools to use on Facebook Covers and Profile pictures. Just follow on to the Foundation’s Facebook page at https://www.facebook.com/trisomy18 and grab yours today. Share Pictures to the Facebook page of you and …
YOU DID IT! We are so Proud of you! Sugarlands Distilling Company has just announced the Moonshare Grants Recipients and… Posted by Trisomy 18 Foundation on Tuesday, February 2, 2016
Trisomy 18 Families, we’re using this time of year to reflect on all of you, and thank you for all you’ve done. You have supported the Foundation with your gifts to invest in solutions for Trisomy 18! You have participated in awareness campaigns, and have donated your time and money to help bring a little …
