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Harper Lauren Brooks

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…brain). We elected to have an amniocentesis and the results came back positive for Trisomy 18. Trisomy 18 is a terminal chromosome abnormality considered “not compatible with life”. Termination of…

Colm Gehlen’s Family

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…carry to term or not; we always knew that we could not terminate a pregnancy under any circumstances.” In choosing to share the news with others, Pam and Corey told…

Jenna Catherine’s Family

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…29, 2003 they received the preliminary FISH Test results and found out for certain that their much wanted baby girl had Trisomy 18. “I think I knew deep down all…

Trinity Nicole’s Family

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…him to come home to be with Trinity and the family, but before he got home she was already gone. “He didn’t even notice, he did come up and smell…

Sophie Tula Stavridis

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complete in every way: full of joy, comfort, suffering, silliness, quiet time, twists and turns that make up a life well lived. Every day was so rich and full of…

Elise Marie Parker

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…it was time for me to take the regular blood screening test which I knew would come back normal. I remember the dreadful call like it was yesterday. It was…

Connect With Other Families

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…and the rest of your family. But you are not alone. There is an entire community of parents who faced what you’re facing and come out the other side. At…

3 Reasons Connecting With Community Helps You Navigate This Difficult Journey

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…to someone who has walked a similar path can be comforting, as they can empathize with the complexities of your emotions and offer support that feels genuine and grounded in…

Remembering a Child

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…Share your emotions and experiences with other families in our online support community. Whatever ways you choose to help you cope, be gentle with yourself. There is no right or…

Amanda Lynn’s Family

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…to hold her, if only for a little while. I’m very thankful for all the love and support from our friends and families and for the Online Community Support Website…