Topic: Family Stories

Living with Trisomy18

Our son Christopher is a 14-year-old cute boy, who was diagnosed with Trisomy 18, at the 25th week of pregnancy. At birth, he was full term, weight 4lbs 11oz and 14 inches long. He was only expected to live for two months since he was critically ill at birth. Doctors predicted his life would be …

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Benjamin Elisha

On April 4th 2020, my husband and I found out we were expecting our second baby. We had one little girl, just a year and two months old at the time. I was 27 years old, my husband 33. No history of any genetic concerns and one history of a healthy beautiful girl, so trisomy …

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Sophie Tula Stavridis

This is the story of my daughter Sophie, which is also the most beautiful part of my own life’s story. It begins at the end of many frustrating months of trying to conceive and two months after the loss of my first pregnancy, in December, at the dawn of a new year. My husband and …

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Toban Josiah Zechin

Toban Josiah Zechin May 1, 2020 As an “older” couple, my husband and I joyfully started our family. Our firstborn son, Kevan Scott Zechin III filled our lives with a deeper love than we have ever known. We eagerly wanted to give him a sibling and we actively attempted to get pregnant for months in …

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Justin Friedrich

My name is Justin Augustus Friedrich and I was born on October Eighteen Nineteen Ninety-Four. When I was born, I didn’t really notice that I was different nor did I know that I had a unique DNA. All I knew then was just that I am a child born with a loving family. Even though …

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Madelyn 74d 3hr 6min

I’m going to be fairly detailed, I remember having so many questions when I first learned that my baby had trisomy 18. Hopefully this will help another family who just found out. 2019 was a difficult year for us. We got married in May, my husband deployed in June and I found out a week …

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Emmi Marie Mook

Emmi was born on 12/13/19 with a full diagnosis of trisomy 18! We were told throughout our pregnancy that she wouldn’t make it but Emmi was such a warrior she defied the odds. Emmi Marie went home to heaven on 1/22/20 in the arms of her family. We had 40 amazing days filled with endless …

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Gracie Lou is an Angel too…

In March, we were surprised to find out that we were pregnant! We went for our first doctors appointment in April and were so excited after seeing Baby Tusa busy moving around during the ultrasound. We then visited with our doctor when they shared they found a possible concern during the ultrasound, which could possibly …

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Loss of baby

Hello. I am a mother of 2 beautiful children. In June of this year, I found out I was pregnant again. It was such a surprise to my husband and myself, but we were ready to welcome another beautiful child here. We went to our routine appointments as scheduled. From the start, however, I couldn’t …

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